Learn About the SRNA Peer Connect Program

One of the most difficult parts of having a rare neuroimmune disorder is the feeling of being alone following diagnosis. Usually, a person has never heard of their disorder prior to being diagnosed, and they likely do not know anyone else diagnosed with the same disorder. SRNA launched our Peer Connect Program in 2021 to address the need for one-on-one connections between people diagnosed with rare neuroimmune disorders.

Peer connect leaders, or PCLs, are trusted individuals who can offer essential information, give emotional support, and share what they have learned. PCLs are not doctors, so they cannot dispense medical advice; however, they can direct their peers to resources to help answer their questions. Each PCL is trained to best facilitate a positive and safe interaction with their peers.

In 2022, we were able to match 53 participants with our 20 peer connect leaders. There were over 150 documented connections made. We are continuing to expand this program as more community members are willing to volunteer as peer connect leaders.

If you are interested in sharing information about this program with your patients, please visit our Peer Connect Program information page here, and contact Lydia Dubose at [email protected].