Sharing our experiences and learning together with others who truly understand what it is to live with or care for another with a rare neuroimmune disease can be life-changing. By sharing our struggles and celebrations, learning at educational opportunities, exchanging resources or meeting at awareness events, we can experience healing and comfort knowing we are not alone.
Click below to get in contact with a Support Group Leader near you. If you are interested in joining a local support group, please contact your closest support group leader. If you do not see a group near you and would like to help start one, please email [email protected] or click here to learn more about volunteering with SRNA!
We also offer Online Support Group Meetings so that you can connect with others no matter where you live. Scroll down to view a schedule of upcoming meetings or click here to learn more about online support meetings.
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Pilar Schnadenberger
Germany
Clarissa Cummings
England
Paul Garrett
Ontario
Emily Woolf
Sibling Support Group (18+)
Alexandra Goulimi
Greece
Laura Murray
Australia
Andrew Jopson
Young Adults Group
Barbara Sattler
Philip Rives
Los Angeles, CA
Lena Loquellano
Los Angeles, CA
Jodi Arminio
Rebecca Whitney
Darlene Bois
Davison, MI
Pamela Becker
Toms River, NJ
Jamie Ahlawat
North Brunswick, NJ
Lyd L
Teen Group Support
Kylie Tucker
Seattle, Washington
Alan Finger
Boston, Massachusetts
Tara Duffy
Bedford, New Hampshire
Doug & Holly Kirby
Salt Lake City, UT
Deborah Capen
Click the filter button to find a support group near you. If you are interested in joining a support group, please contact your closest support group leader. If you do not see a group near you and would like to help start one, please email us at [email protected]. Don’t forget to review our volunteer handbook!
Pilar Schnadenberger
Germany
Clarissa Cummings
England
Paul Garrett
Ontario
Emily Woolf
Sibling Support Group (18+)
Alexandra Goulimi
Greece
Laura Murray
Australia
Andrew Jopson
Young Adults Group
Barbara Sattler
Philip Rives
Los Angeles, CA
Lena Loquellano
Los Angeles, CA
Jodi Arminio
Rebecca Whitney
Darlene Bois
Davison, MI
Pamela Becker
Toms River, NJ
Jamie Ahlawat
North Brunswick, NJ
Lyd L
Teen Group Support
Kylie Tucker
Seattle, Washington
Alan Finger
Boston, Massachusetts
Tara Duffy
Bedford, New Hampshire
Doug & Holly Kirby
Salt Lake City, UT
Deborah Capen
