Share your Story with a “This is Me” Video


The “This is Me educational awareness campaign that SRNA launched earlier this year is being met with great success. The goals of this campaign are to increase understanding of rare neuroimmune disorders and to support those diagnosed with these disorders by providing a forum for sharing personal stories and experiences.

We would like to thank the many members of our community who have opened their hearts and lives to us by sharing their stories and recording their videos. The SRNA video library of inspiring stories from both children and adults is growing each day.

Please consider sharing your story, or a loved one’s story, by recording a “This is Mevideo. Your video will help educate others, celebrate your resilience and strength, and provide hope, comfort, and support for members of our community who may feel isolated or alone in their struggles.

To get started, simply click on the link below that corresponds to the neuroimmune disorder that relates to your story and sign up to record your video. We can’t wait to hear from you!