Three Successful Summer Awareness Campaigns Launched in 2021

The summer of 2021 was a busy and exciting one for SRNA. Three awareness campaigns were launched to bring attention to rare neuroimmune disorders and highlight the work that SRNA does to help support people facing these diagnoses.

We kicked off the summer in June with Transverse Myelitis (TM) Awareness Month. This campaign was designed to educate the public and bring awareness to TM, which is a rare inflammatory disorder that causes injury to the spinal cord. Social media platforms were utilized for sharing information, resources, and stories. We are grateful for the tremendous support we received from community members who enthusiastically shared with family and friends—our first Facebook post reached over 35,000 people! If you haven’t already, please follow SRNA on FacebookInstagram, and Twitter and help us build on this momentum.

During the month of July, SRNA launched Acute Flaccid Myelitis (AFM) Awareness Month, in partnership with the Centers for Disease Control and Prevention (CDC). AFM is a rare neurological condition that mostly affects children and causes limb weakness and paralysis. Social media outlets were leveraged to share information, resources, and personal stories from community members. Because AFM is a medical emergency, our campaign focused on the importance of recognizing the signs of this rare neuroimmune disorder. It is critical that parents, pediatricians, and emergency care physicians know the signs of AFM so that they can seek and provide immediate care. We ask you to please help us continue to spread the word by following us on FacebookInstagram, and Twitter and sharing SRNA and CDC posts.

At the end of July, we celebrated our 27th anniversary! We are so proud of the work that SRNA has done to serve our community and improve the lives of people with rare neuroimmune disorders. There have been many accomplishments made over the last 27 years, and we thank all the community members, friends, supporters, clinicians, and sponsors who have helped us along the way. To mark the occasion of our anniversary, we launched an awareness campaign about SRNA and fundraising efforts. Our campaign asked our supporters to answer the question, “Why do you give?”  You can see some of their responses here and by viewing July 2021 posts on FacebookInstagram, and Twitter.