Notes from the Georgia Support Group Meeting
Kim Harrison, SRNA Support Group Leader
We had a successful NMOSD-TM-ADEM-MS meeting on February 13, 2016!! Our group has grown. It is such a good feeling when we get together with our fellow myelitis brothers and sisters. February 13th was an extra special day for us to meet. Senator Donzella James signed Resolution 809 on February 15, 2002, recognizing this date as Transverse Myelitis Awareness Day.
We spent the first half of the meeting catching up with each other. Two new members discovered that they are from the same Georgia town and know a lot of the same people and had not met before! The second half of the meeting we were joined by Anneke Bender, physical therapist from Shepherd Center. She discussed with our group the difference between PT and OT. Anneke demonstrated for us how the smallest movements from a seated position can make a difference in our posture, discussed core strengthening, and even had us doing yoga. She helped us to understand the importance of exercise in our lives and how to manage the fatigue associated with our neuroimmune disorders.
February 29th is rare disease day and we will be at the Georgia State Capitol handing out SRNA flyers. For those interested in joining us, please email SRNA at [email protected].
We are looking forward to our March meeting and another great turn out.
Thank you to all who joined us for our February meeting.