2019 Rare Neuroimmune Disorders Symposium

September 19-21, 2019 | Columbus, Ohio

Opening Remarks: Welcome and Goals of the 2019 RNDS
Benjamin Greenberg, MD, MHS | University of Texas Southwestern Medical Center and Children’s Medical Center Dallas

Living with a Rare Neuroimmune Disorder: Sharing Stories and Experiences
Moderated Discussion with Members of our Community

Stronger Together: Why Study These Disorders Collectively?
Benjamin Greenberg, MD, MHS | University of Texas Southwestern and Children’s Medical Center

Sessions on the Diagnosis and Treatment of Rare Neuroimmune Disorders: Pediatric and Adult

Transverse Myelitis
Michael Sweeney, MD | University of Louisville

Acute Flaccid Myelitis
Sarah Hopkins, MD, MPH | Children’s Hospital of Philadelphia

MOG Antibody-Associated Disease
Kyle Blackburn, MD | University of Texas Southwestern Medical Center

Neuromyelitis Optica Spectrum Disorder
Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School

Acute Disseminated Encephalomyelitis
Cynthia Wang, MD | University of Texas Southwestern Medical Center

Recurrent vs Monophasic Disorders
Cynthia Wang, MD | University of Texas Southwestern Medical Center

Vascular Myelopathies
Carlos Pardo-Villamizar, MD | The Johns Hopkins University School of Medicine

Myelitis in Systemic Rheumatologic Conditions
Michael Bradshaw, MD | Billing’s Clinic

Updates from SRNA
SRNA Staff

The Future of NMOSD Therapeutics: What Have We Learned?
Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School
Benjamin Greenberg, MD, MHS | University of Texas Southwestern and Children’s Medical Center
Ankur Bhambri, DO | Alexion Pharmaceuticals
Eliezer Katz, MD, FACS | Viela Bio

Workgroup Session I: Finding Medical Help
Denise Maddox, RN | University of Texas Southwestern and Children’s Medical Center
Katherine Treadaway, LCSW, MSCIR | University of Texas Southwestern Medical Center

Workgroup Session II: IEPs and 504s
Anjali Forber-Pratt, PhD | Vanderbilt University
Lana Harder, PhD | University of Texas Southwestern and Children’s Medical Center

Workgroup Session III: ADA, Disability, and Benefits
Anjali Forber-Pratt, PhD | Vanderbilt University
Sandy Hanebrink, OTR/L, CLP, FAOTA | Touch the Future, Inc.
Katherine Treadaway, LCSW, MSCIR | University of Texas Southwestern Medical Center

Rehabilitation and Rare Neuroimmune Disorders: Current Best Practices and Future Advances
Cristina Sadowsky, MD | Kennedy Krieger Institute

Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells
in Transverse Myelitis
Benjamin Greenberg, MD, MHS | University of Texas Southwestern and Children’s Medical Center

Are Rare Neuroimmune Disorders Genetic?
Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School

Collaborative Efforts to Address an Urgent Health Need: AFM Working Group
Carlos Pardo-Villamizar, MD | The Johns Hopkins University School of Medicine
Benjamin Greenberg, MD, MHS | University of Texas Southwestern and Children’s Medical Center
Sarah Hopkins, MD, MPH | Children’s Hospital of Philadelphia
Janell Routh, MD, MHS | CDC
Emily Erbelding, MD, MPH | NIAID, NIH
Cristina Sadowsky, MD | Kennedy Krieger Institute

What is Spasticity in Rare Neuroimmune Disorders?
Philippines Cabahug, MD | Kennedy Krieger Institute

All Things Urological: UTIs, Catheters, and Incontinence
Cristina Sadowsky, MD | Kennedy Krieger Institute

Why Am I So Tired All the Time?
Carlos Pardo-Villamizar, MD | The Johns Hopkins University School of Medicine

The Central Nervous System (CNS) Connection: Understanding Depression, Cognitive Functioning,
and Fatigue in CNS Demyelinating Disorders
Lana Harder, PhD | University of Texas Southwestern and Children’s Medical Center

Updates in Imaging Research
Nadia Barakat, PhD | Boston Children’s Hospital

What is Pain, Numbness, and Tingling?
Jacqueline A. Nicholas, MD, MPH | OhioHealth

New Trends in Pain Management
Maureen A. Mealy, PhD, RN, BSN, MSCN | Viela Bio

How is Disability Identity Formed? Findings from a Study with Adolescents
Anjali Forber-Pratt, PhD | Vanderbilt University

Pregnancy And Rare Neuroimmune Diagnoses
Moderated Panel Discussion

How to Manage Constipation and Prevent Accidents: Bowel Management Strategies
Janet Dean, MS, RN, CRRN, CRNP, CRND | Kennedy Krieger Institute

The Future of Rare Neuroimmune Disorder Care: Meet the Fellows and Q&A
Michael Sweeney, MD | University of Louisville
Cynthia Wang, MD | University of Texas Southwestern Medical Center
Kyle Blackburn, MD | University of Texas Southwestern Medical Center
Jonathan Galli, MD | University of Utah

Closing Remarks
Carlos Pardo-Villamizar, MD | The Johns Hopkins University School of Medicine