Resource Center
August 29 | 8:15 AM MT
Welcome and Goals of the 2020 RNDS
Jonathan Galli, MD
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August 29 | 8:30 AM MT
What is Acute Flaccid Myelitis (AFM)
Michael Sweeney, MD
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August 29 | 8:45 AM MT
What is Acute Disseminated Encephalomyelitis (ADEM)?
M. Mateo Paz Soldán, MD, PHD
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August 29 | 9:00 AM MT
What is Transverse Myelitis (TM)?
Stacey Clardy, MD, PhD
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August 29 | 9:15 AM MT
What is MOG Antibody Disease (MOGAD)?
Sravanthi Vegunta, MD
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August 29 | 9:30 AM MT
What is Neuromyelitis Optica Spectrum Disorder and Optic Neuritis (NMOSD/ON)?
Jonathan Galli, MD
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August 29 | 9:45 AM MT
Rare Neuroimmune Disorders Q& Panel
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August 29 | 10:15 AM MT
Updates from SRNA Staff
GG de Fiebre & Jeremy Bennett
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August 29 | 10:45 AM MT
Symptom Management | Managing Bowel, Bladder, and Sexual Dysfunction
Janet M. Dean, MS, RN, CRRN, CRNP
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August 29 | 11:15 AM MT
Symptom Management | Types of Pain and How to Treat Them
Justin Abbatemarco, MD
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August 29 | 11:30 AM MT
Symptom Management | Managing Spasticity and Tone
Jason Poon, MD
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August 29 | 11:45 AM MT
Symptom Management | How to Manage Visual Issues
Deb Nikkila, MOT, OTR/L
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August 29 | 12:00 PM MT
Symptom Management Q&A Panel
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August 29 | 12:45 PM MT
COVID-19 and Rare Neuroimmune Disorders
Benjamin M. Greenberg, MD, University of Texas Southwestern
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August 29 | 1:00 PM MT
Updates in Rehabilitation in Rare Neuroimmune Disorders
Cristina Sadowsky, MD
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August 29 | 1:15 PM MT
Long-term Treatments for Preventing Relapses
Michael Levy, MD, PhD
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August 29 | 1:30 PM MT
AFM Preparedness for 2020 and Beyond
Carlos Pardo, MD
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August 29 | 2:00 PM MT
Breakout Session: Imaging in Rare Neuroimmune Disorders
Scott McNally, MD, PhD
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August 29 | 12:45 PM MT
Breakout Session: Stress Management and Coping
Katherine Treadaway, LCSW, MSCIR and Ana M. Hernandez, MS, CBIS
August 29 | 12:45 PM MT
Breakout Session: Novel therapeutic strategies in NMOSD
August 29 | 12:45 PM MT
Breakout Session: IEPs and 504s: How to Advocate for Your Child in School
Christa Hutaff-Lee, PhD, ABPP-CN
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August 29 | 12:45 PM MT
Closing remarks
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Resource Center
| Talk | Speaker | Institution | |||
| Welcome and Goals of the 2020 RNDS | Jonathan Galli, MD | Univ. of Utah | 8:15 AM | MT | Watch Video Download Transcript |
| What is Acute Flaccid Myelitis (AFM)? | Michael Sweeney, MD | Norton Children’s Hospital and the University of Louisville School of Medicine | 8:30 AM | MT | Watch Video Download Slides Download Transcript |
| What is Acute Disseminated Encephalomyelitis (ADEM)? | M. Mateo Paz Soldán, MD, PHD | Univ. of Utah | 8:45 AM | MT | Watch Video Download Slides Download Transcript |
| What is Transverse Myelitis (TM)? | Stacey Clardy, MD, PhD | Univ. of Utah | 9:00 AM | MT | Watch Video Download Slides Download Transcript |
| What is MOG Antibody Disease (MOGAD)? | Sravanthi Vegunta, MD | Univ. of Utah | 9:15 AM | MT | Watch Video Download Slides Download Transcript |
| What is Neuromyelitis Optica Spectrum Disorder and Optic Neuritis (NMOSD/ON)? | Jonathan Galli, MD | Univ. of Utah | 9:30 AM | MT | Watch Video Download Slides Download Transcript |
| Rare Neuroimmune Disordes Q&A Panel | 9:45 AM | MT | Watch Video Download Transcript | ||
| Updates from SRNA Staff | GG deFiebre & Jeremy Bennett | SRNA | 10:15 AM | MT | Watch Video Download Slides Download Transcript |
| Symptom Management | Managing Bowel, Bladder, and Sexual Dysfunction | Janet M. Dean, MS, RN, CRRN, CRNP | International Center for Spinal Cord Injury (ICSCI) at the Kennedy Krieger Institute | 10:45 AM | MT | Watch Video Download Slides Download Transcript |
| Symptom Management | Types of Pain and How to Treat Them | Justin Abbatemarco, MD | Univ. of Utah | 11:15 AM | MT | Watch Video Download Slides Download Transcript |
| Symptom Management | Managing Spasticity and Tone | Jason Poon, MD | Univ. of Utah | 11:30 AM | MT | Watch Video Download Slides Download Transcript |
| Symptom Management | How to Manage Visual Issues | Deb Nikkila, MOT, OTR/L | Maryland School for the Blind | 11:45 AM | MT | Watch Video Download Slides Download Transcript |
| Symptom Management Q&A Panel | 12:00 PM | MT | Watch Video Download Transcript | ||
| COVID-19 and Rare Neuroimmune Disorders | Benjamin M. Greenberg, MD | University of Texas Southwestern | 12:45 PM | MT | Watch Video Download Slides Download Transcript |
| Updates in Rehabilitation in Rare Neuroimmune Disorders | Cristina Sadowsky, MD | International Center for Spinal Cord Injury at the Kennedy Krieger Institute & Johns Hopkins School of Medicine | 1:00 PM | MT | Watch Video Download Slides Download Transcript |
| Long-term Treatments for Preventing Relapses | Michael Levy, MD, PhD | Harvard Medical School & Massachusetts General Hospital | 1:15 PM | MT | Watch Video Download Slides Download Transcript |
| AFM Preparedness for 2020 and Beyond | Carlos Pardo, MD | Johns Hopkins University School of Medicine | 1:30 PM | MT | Watch Video Download Slides Download Transcript |
| Breakout Session: Imaging in Rare Neuroimmune Disorders | Scott McNally, MD, PhD | Univ. of Utah | 2:00 PM | MT | Download Slides |
| Breakout Session: Stress Management and Coping | Katherine Treadaway, LCSW, MSCIR & Ana M. Hernandez, MS, CBIS | University of Texas Southwestern & Children’s Health Dallas (AH) | 2:00 PM | MT | |
| Breakout Session: Novel therapeutic strategies in NMOSD | 2:00 PM | MT | |||
| Breakout Session: IEPs and 504s: How to Advocate for Your Child in School | Christa Hutaff-Lee, PhD, ABPP-CN | University of Colorado School of Medicine | 2:00 PM | MT | Download Slides |
| Closing remarks | Jonathan Galli, MD | Univ. of Utah | 3:30 PM | MT | Watch Video Download Transcript |
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