2021RNDS
October 8-10 2021, Virtual Conference
Resource Center
Day 1 | Tracks
October 8 | 10:50 AM ET
Welcome
Roberta Pesce & Sandy Siegel, PhD
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October 8 | 11:15 AM ET
How do you get a diagnosis of ADEM, AFM, MOGAD, NMOSD, ON, and TM? | TRACK 1
Kyle Blackburn, MD
Watch Video
Download slides
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October 8 | 11:15 AM ET
Living with ADEM, AFM, MOGAD, NMOSD, ON and TM | TRACK 2
Michael Levy, MD, PhD
Watch Video
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October 8 | 11:15 AM ET
Understanding pediatric ADEM, AFM, MOGAD, NMOSD, ON and TM | TRACK 3
Sarah Hopkins, MD, MSPH
Watch Video
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October 8 | 12:00 PM ET
Meet SRNA
GG deFiebre
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October 8 | 12:30 PM ET
Acute Disseminated Encephalomyelitis (ADEM)
Cynthia Wang, MD
Watch Video
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October 8 | 12:30 PM ET
Acute Flaccid Myelitis (AFM)
Leslie Benson, MD
Watch Video
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October 8 | 12:30 PM ET
MOG Antibody Disease (MOGAD)
Michael Levy, MD, PhD
Watch Video
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October 8 | 12:30 PM ET
Neuromyelitis Optica Spectrum Disorder (NMOSD)
Justin Abbatemarco, MD
Watch Video
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October 8 | 12:30 PM ET
Transverse Myelitis (TM)
Carlos Pardo-Villamizar, MD
Watch Video
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October 8 | 1:00 PM ET
Acute treatments at onset and relapse
Eoin P. Flanagan, MB, BCh
Watch Video
Download slides
Download Transcript
October 8 | 1:20 PM ET
Identifying relapses vs. temporary worsening of symptoms
Paula Barreras, MD
Watch Video
Download slides
Download Transcript
October 8 | 1:40 PM ET
A Treatment Option for NMOSD
Cara Amos
Watch Video
Download slides
Download Transcript
October 8 | 2:00 PM ET
Transitioning from hospital to home | TRACK 1
L. A. Campbell, PT, DPT, MBA, MSCS
Watch Video
Download slides
Download Transcript
October 8 | 2:00 PM ET
Understanding MOG and AQP-4 antibody testing | TRACK 2
Elias Sotirchos, MD
Watch Video
Download slides
Download Transcript
October 8 | 2:00 PM ET
Learning to understand your child’s symptoms | TRACK 3
Janet M. Dean, MS, RN, CRRN, CRNP
Watch Video
Download slides
Download Transcript
October 8 | 2:20 PM ET
Early rehabilitation strategies | TRACK 1
Cristina Sadowsky, MD
Watch Video
Download Transcript
October 8 | 2:20 PM ET
Ongoing rehabilitation strategies | TRACK 2
Philippines Cabahug, MD
Watch Video
Download Transcript
October 8 | 2:20 PM ET
Pediatric rehabilitation strategies and surgical interventions | TRACK 3
Kim Bjorklund, MD, Melissa Hutchinson, MD, and Nathan Rosenberg, MD
Watch Video
Download Transcript
October 8 | 2:40 PM ET
Meet an occupational therapist and physical therapist: A conversation | TRACK 1
Dennis Tom-Wigfield PT, DPT, CRND and Kaitlin Hagen, MOT, OTR/L
Watch Video
Download slides
Download Transcript
October 8 | 2:40 PM ET
Disability benefits and vocational rehabilitation | TRACK 2
Janelle Hewelt, MEd, CRC
Watch Video
Download slides
Download Transcript
October 8 | 2:40 PM ET
Transitioning from pediatric to adult care: a conversation | TRACK 3
Cristina Sadowsky, MD and Cody Unser, MPH
Watch Video
Download Transcript
October 8 | 3:10 PM ET
Adaptations: Mobility devices, driving, and home modifications
Sandy Hanebrink, OTR/L, CLP, FAOTA
Watch Video
Download slides
Download Transcript
October 8 | 3:40 PM ET
Building your health care team
Benjamin Greenberg, MD, MHS and GG deFiebre, MPH
Watch Video
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Day 2 | Symptom Management
October 9 | 10:40 AM ET
Welcome to Day 2
Roberta Pesce
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October 9 | 10:50 AM ET
What is neuropathic pain, numbness, and tingling?
Ram Narayan, MD
Watch Video
Download slides
Download Transcript
October 9 | 11:10 AM ET
The CNS connection and psychosocial aspects of being diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM
Lana Harder, PhD, ABPP
Watch Video
Download slides
Download Transcript
October 9 | 11:40 AM ET
Meet our non-profit partners- moderated panel
Watch Video
Download Transcript
October 9 | 12:30 PM ET
UTIs, catheters, and incontinence
Philippines Cabahug, MD
Watch Video
Download slides
Download Transcript
October 9 | 1:00 PM ET
Identifying and managing fatigue
Sara Qureshi, MD
Watch Video
Download slides
Download Transcript
October 9 | 1:20 PM ET
Solutions to managing spasticity in kids and adults
Jacqueline Nicholas, MD
Watch Video
Download slides
Download Transcript
October 9 | 1:40 PM ET
How to manage constipation and prevent accidents: Bowel management strategies
Margaret Jones, MD, MPH
Watch Video
Download slides
Download Transcript
October 9 | 2:00 PM ET
Pregnancy and a rare neuroimmune diagnosis
Tanuja Chitnis, MD
Watch Video
Download slides
Download Transcript
October 9 | 2:20 PM ET
Management of vision after optic neuritis
John J. Chen, MD, PhD
Watch Video
Download slides
Download Transcript
October 9 | 2:40 PM ET
Helping you understand treatment with ENSPRYNG
Jason Kohari
Watch Video
Download slides
Download Transcript
October 9 | 3:20 PM ET
Aging with a rare neuroimmune disorder
Daniel Becker, MD
Watch Video
Download slides
Download Transcript
October 9 | 3:40 PM ET
Vaccinations after a diagnosis of a rare neuroimmune disorder
Benjamin Greenberg, MD, MHS, Carlos Pardo-Villamizar, MD, and Michael Levy, MD, PhD
Watch Video
Download Transcript
Day 3 | Research
October 10 | 11:00 AM ET
Welcome to Day 3
Roberta Pesce
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Download Transcript
October 10 | 11:10 AM ET
CDC AFM Biorepository and Moderated Roundtable on AFM Research with Q&A session
Carlos Pardo-Villamizar, MD, Eileen Yee, MD, Janell Routh, MD, Amy Rosenfeld, and Nischay Mishra
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Download Transcript
October 10 | 12:00 PM ET
Research 101 – learn about the process of basic science and clinical research
Benjamin Greenberg, MD, MHS
Watch Video
Download slides
Download Transcript
October 10 | 12:15 PM ET
Anti-MOG Associated Disorder: Insights Into Neuroplasticity and Opportunities for Repair
Benjamin Greenberg, MD, MHS
Watch Video
Download slides
Download Transcript
October 10 | 12:30 PM ET
Assessing the impact of social disparities of health on disability and access to care in NMOSD patients
Sammita Satyanarayan, MD
Watch Video
Download slides
Download Transcript
October 10 | 1:00 PM ET
Nutrition, Genetics, and stem cells in rare neuroimmune disorders
Michael Levy, MD, PhD
Watch Video
Download slides
Download Transcript
October 10 | 1:25 PM ET
SRNA research updates: Registry, vaccination study, and COVID-19 study
GG deFiebre, MPH
Watch Video
Download slides
Download Transcript
October 10 | 1:40 PM ET
Research on rare neuroimmune disorders and rheumatologic diseases
Rohini D. Samudralwar, MD
Watch Video
Download slides
Download Transcript
October 10 | 2:00 PM ET
CIRCLES and SPHERES NMOSD Studies
Jacinta Behne
Watch Video
Download slides
Download Transcript
October 10 | 2:40 PM ET
APERTURE: What have we learned about ADEM?
Cynthia Wang, MD
Watch Video
Download slides
Download Transcript
October 10 | 3:20 PM ET
CORE TM and AFM
Kyle Blackburn, MD
Watch Video
Download slides
Download Transcript
October 10 | 3:40 PM ET
COVID-19 and rare neuroimmune disorders
Benjamin Greenberg, MD, MHS, Carlos Pardo-Villamizar, MD, and Michael Levy, MD, PhD
Watch Video
Download slides
Download Transcript
October 10 | 4:30 PM ET
Closing remarks
Roberta Pesce
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Resource Center
| Talk | Speaker | Institution | |||
| Welcome | Roberta Pesce Sandy Siegel, PhD | SRNA | 10:50 AM | ET | Watch Video Download Transcript |
| How do you get a diagnosis of ADEM, AFM, MOGAD, NMOSD, ON, and TM? | TRACK 1 | Kyle Blackburn, MD | UT Southwestern Medical Center | 11:15 AM | ET | Watch Video Download Slides Download Transcript |
| Living with ADEM, AFM, MOGAD, NMOSD, ON and TM | TRACK 2 | Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School | 11:15 AM | ET | Watch Video Download Slides Download Transcript |
| Understanding pediatric ADEM, AFM, MOGAD, NMOSD, ON and TM | TRACK 3 | Sarah Hopkins, MD, MSPH | Children’s Hospital of Philadelphia | 11:15 AM | ET | Watch Video Download Slides Download Transcript |
| Meet SRNA | GG deFiebre | SRNA | 12:00 PM | ET | Watch Video Download Slides Download Transcript |
| Acute Disseminated Encephalomyelitis (ADEM) | Cynthia Wang, MD | UT Southwestern Medical Center | 12:30 PM | ET | Watch Video Download Slides Download Transcript |
| Acute Flaccid Myelitis (AFM) | Leslie Benson, MD | Boston Children's Hospital | 12:30 PM | ET | Watch Video Download Slides Download Transcript |
| MOG Antibody Disease (MOGAD) | Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School | 12:30 PM | ET | Watch Video Download Slides Download Transcript |
| Neuromyelitis Optica Spectrum Disorder (NMOSD) | Justin Abbatemarco, MD | University of Utah | 12:30 PM | ET | Watch Video Download Slides Download Transcript |
| Transverse Myelitis (TM) | Carlos Pardo-Villamizar, MD | Johns Hopkins Medicine | 12:30 PM | ET | Watch Video Download Slides Download Transcript |
| Acute treatments at onset and relapse | Eoin P. Flanagan, MB, BCh | Mayo Clinic | 1:00 PM | ET | Watch Video Download Slides Download Transcript |
| Identifying relapses vs. temporary worsening of symptoms | Paula Barreras, MD | Johns Hopkins Medicine | 1:20 PM | ET | Watch Video Download Slides Download Transcript |
| A Treatment Option for NMOSD | Cara Amos | Alexion, AstraZeneca Rare Disease | 1:40 PM | ET | Watch Video Download Slides Download Transcript |
| Transitioning from hospital to home | TRACK 1 | L. A. Campbell, PT, DPT, MBA, MSCS | Barrow Neurological Institute | 2:00 PM | ET | Watch Video Download Slides Download Transcript |
| Understanding MOG and AQP-4 antibody testing | TRACK 2 | Elias Sotirchos, MD | Johns Hopkins Medicine | 2:00 PM | ET | Watch Video Download Slides Download Transcript |
| Learning to understand your child’s symptoms | TRACK 3 | Janet M. Dean, MS, RN, CRRN, CRNP | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 2:00 PM | ET | Watch Video Download Slides Download Transcript |
| Early rehabilitation strategies | TRACK 1 | Cristina Sadowsky, MD | International Center for Spinal Cord Injury at the Kennedy Krieger Institute & Johns Hopkins University School of Medicine | 2:20 PM | ET | Watch Video Download Transcript |
| Ongoing rehabilitation strategies | TRACK 2 | Philippines Cabahug, MD | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 2:20 PM | ET | Watch Video Download Transcript |
| Pediatric rehabilitation strategies and surgical interventions | TRACK 3 | Kim Bjorklund, MD Melissa Hutchinson, MD Nathan Rosenberg, MD | Nationwide Children's Hospital | 2:20 PM | ET | Watch Video Download Transcript |
| Meet an occupational therapist and physical therapist: A conversation | TRACK 1 | Dennis Tom-Wigfield PT, DPT, CRND Kaitlin Hagen, MOT, OTR/L | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 2:40 PM | ET | Watch Video Download Slides Download Transcript |
| Disability benefits and vocational rehabilitation | TRACK 2 | Janelle Hewelt, MEd, CRC | MEd | 2:40 PM | ET | Watch Video Download Slides Download Transcript |
| Transitioning from pediatric to adult care: a conversation | TRACK 3 | Cristina Sadowsky, MD Cody Unser, MPH | International Center for Spinal Cord Injury at the Kennedy Krieger Institute Cody Unser Foundation | 2:40 PM | ET | Watch Video Download Transcript |
| Adaptations: Mobility devices, driving, and home modifications | Sandy Hanebrink, OTR/L, CLP, FAOTA | Touch the Future | 3:10 PM | ET | Watch Video Download Slides Download Transcript |
| Building your health care team | Benjamin Greenberg, MD, MHS GG deFiebre, MPH | UT Southwestern Medical Center SRNA | 3:40 PM | ET | Watch Video Download Transcript |
| Talk | Speaker | Institution | |||
| Welcome to Day 2 | Roberta Pesce | SRNA | 10:40 AM | ET | Watch Video Download Transcript |
| What is neuropathic pain, numbness, and tingling? | Ram Narayan, MD | Barrow Neurological Institute | 10:50 AM | ET | Watch Video Download Slides Download Transcript |
| The CNS connection and psychosocial aspects of being diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM | Lana Harder, PhD, ABPP | Children's Health & UT Southwestern | 11:10 AM | ET | Watch Video Download Slides Download Transcript |
| Meet our non-profit partners- moderated panel | Chelsey Judge, PhD Cody Unser, MPH Jacinta Behne Julia Lefelar Katie Bustamante Sumaira Ahmed | 11:40 AM | ET | Watch Video Download Transcript | |
| UTIs, catheters, and incontinence | Philippines Cabahug, MD | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 12:30 PM | ET | Watch Video Download Slides Download Transcript |
| Identifying and managing fatigue | Sara Qureshi, MD | Billings Clinic | 1:00 PM | ET | Watch Video Download Slides Download Transcript |
| Solutions to managing spasticity in kids and adults | Jacqueline Nicholas, MD | Ohio Health | 1:20 PM | ET | Watch Video Download Slides Download Transcript |
| How to manage constipation and prevent accidents: Bowel management strategies | Margaret Jones, MD, MPH | Vanderbilt University Medical Center | 1:40 PM | ET | Watch Video Download Slides Download Transcript |
| Pregnancy and a rare neuroimmune diagnosis | Tanuja Chitnis, MD | Brigham and Women's Hospital | 2:00 PM | ET | Watch Video Download Slides Download Transcript |
| Management of vision after optic neuritis | John J. Chen, MD, PhD | Mayo Clinic | 2:20 PM | ET | Watch Video Download Slides Download Transcript |
| Helping you understand treatment with ENSPRYNG | Jason Kohari | Genentech | 2:40 PM | ET | Watch Video Download Slides Download Transcript |
| Aging with a rare neuroimmune disorder | Daniel Becker, MD | International Neurorehabilitation Institute | 3:20 PM | ET | Watch Video Download Slides Download Transcript |
| Vaccinations after a diagnosis of a rare neuroimmune disorder | Benjamin Greenberg, MD, MHS Carlos Pardo-Villamizar, MD Michael Levy, MD, PhD | University of Texas Southwestern Massachusetts General Hospital and Harvard Medical School Johns Hopkins Medicine | 3:40 PM | ET | Watch Video Download Transcript |
| Talk | Speaker | Institution | |||
| Welcome to Day 3 | Roberta Pesce | SRNA | 11:00 AM | ET | Watch Video Download Transcript |
| CDC AFM Biorepository and Moderated Roundtable on AFM Research With Q and A session | Carlos Pardo-Villamizar, MD Eileen Yee, MD Janell Routh, MD Amy Rosenfeld Nischay Mishra | Johns Hopkins Medicine Centers for Disease Control and Prevention Columbia University | 11:10 AM | ET | Watch Video Download Transcript |
| Research 101 – learn about the process of basic science and clinical research | Benjamin Greenberg, MD, MHS | UT Southwestern Medical Center | 12:00 PM | ET | Watch Video Download Slides Download Transcript |
| Anti-MOG Associated Disorder: Insights Into Neuroplasticity and Opportunities for Repair | Benjamin Greenberg, MD, MHS | UT Southwestern Medical Center | 12:15 PM | ET | Watch Video Download Slides Download Transcript |
| Assessing the impact of social disparities of health on disability and access to care in NMOSD patients | Sammita Satyanarayan, MD | Icahn School of Medicine at Mount Sinai | 12:30 PM | ET | Watch Video Download Slides Download Transcript |
| Nutrition, Genetics, and stem cells in rare neuroimmune disorders | Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School | 1:00 PM | ET | Watch Video Download Slides Download Transcript |
| SRNA research updates: Registry, vaccination study, and COVID-19 study | GG deFiebre, MPH | SRNA | 1:25 PM | ET | Watch Video Download Slides Download Transcript |
| Research on rare neuroimmune disorders and rheumatologic diseases | Rohini D. Samudralwar, MD | University of Texas Health Science Center at Houston | 1:40 PM | ET | Watch Video Download Slides Download Transcript |
| CIRCLES and SPHERES NMOSD Studies | Jacinta Behne | Guthy Jackson Foundation | 2:00 PM | ET | Watch Video Download Slides Download Transcript |
| APERTURE: What have we learned about ADEM? | Cynthia Wang, MD | UT Southwestern Medical Center | 2:40 PM | ET | Watch Video Download Slides Download Transcript |
| CORE TM and AFM | Kyle Blackburn, MD | UT Southwestern Medical Center | 3:20 PM | ET | Watch Video Download Slides Download Transcript |
| COVID-19 and rare neuroimmune disorders | Benjamin Greenberg, MD, MHS Carlos Pardo-Villamizar, MD Michael Levy, MD, PhD | UT Southwestern Medical Center Johns Hopkins Medicine Massachusetts General Hospital and Harvard Medical School | 3:40 PM | ET | Watch Video Download Transcript |
| Closing Remarks | Roberta Pesce | SRNA | 4:30 PM | ET | Watch Video Download Transcript |
Resource Center
| Talk | Speaker | Institution | |||
| Welcome | Roberta Pesce
Sandy Siegel, PhD | SRNA | 10:50 AM | ET | Watch Video |
| How do you get a diagnosis of ADEM, AFM, MOGAD, NMOSD, ON, and TM? | TRACK 1 | Kyle Blackburn, MD | UT Southwestern Medical Center | 11:15 AM | ET | Watch Video |
| Living with ADEM, AFM, MOGAD, NMOSD, ON and TM | TRACK 2 | Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School | 11:15 AM | ET | Watch Video |
| Understanding pediatric ADEM, AFM, MOGAD, NMOSD, ON and TM | TRACK 3 | Sarah Hopkins, MD, MSPH | Children’s Hospital of Philadelphia | 11:15 AM | ET | Watch Video |
| Meet SRNA | GG deFiebre | SRNA | 12:00 PM | ET | Watch Video |
| Acute Disseminated Encephalomyelitis (ADEM) | Cynthia Wang, MD | UT Southwestern Medical Center | 12:30 PM | ET | Watch Video |
| Acute Flaccid Myelitis (AFM) | Leslie Benson, MD | Boston Children’s Hospital | 12:30 PM | ET | Watch Video |
| MOG Antibody Disease (MOGAD) | Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School | 12:30 PM | ET | Watch Video |
| Neuromyelitis Optica Spectrum Disorder (NMOSD) | Justin Abbatemarco, MD | University of Utah | 12:30 PM | ET | Watch Video |
| Transverse Myelitis (TM) | Carlos Pardo-Villamizar, MD | Johns Hopkins Medicine | 12:30 PM | ET | Watch Video |
| Acute treatments at onset and relapse | Eoin P. Flanagan, MB, BCh | Mayo Clinic | 1:00 PM | ET | Watch Video |
| Identifying relapses vs. temporary worsening of symptoms | Paula Barreras, MD | Johns Hopkins Medicine | 1:20 PM | ET | Watch Video |
| A Treatment Option for NMOSD | Cara Amos | Alexion, AstraZeneca Rare Disease | 1:40 PM | ET | Watch Video |
| Transitioning from hospital to home | TRACK 1 | L. A. Campbell, PT, DPT, MBA, MSCS | Barrow Neurological Institute | 2:00 PM | ET | Watch Video |
| Understanding MOG and AQP-4 antibody testing | TRACK 2 | Elias Sotirchos, MD | Johns Hopkins Medicine | 2:00 PM | ET | Watch Video |
| Learning to understand your child’s symptoms | TRACK 3 | Janet M. Dean, MS, RN, CRRN, CRNP | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 2:00 PM | ET | Watch Video |
| Early rehabilitation strategies | TRACK 1 | Cristina Sadowsky, MD | International Center for Spinal Cord Injury at the Kennedy Krieger Institute & Johns Hopkins University School of Medicine | 2:20 PM | ET | Watch Video |
| Ongoing rehabilitation strategies | TRACK 2 | Philippines Cabahug, MD | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 2:20 PM | ET | Watch Video |
| Pediatric rehabilitation strategies and surgical interventions | TRACK 3 | Kim Bjorklund, MD
Melissa Hutchinson, MD Nathan Rosenberg, MD | Nationwide Children’s Hospital | 2:20 PM | ET | Watch Video |
| Meet an occupational therapist and physical therapist: A conversation | TRACK 1 | Dennis Tom-Wigfield PT, DPT, CRND
Kaitlin Hagen, MOT, OTR/L | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 2:40 PM | ET | Watch Video |
| Disability benefits and vocational rehabilitation | TRACK 2 | Janelle Hewelt, MEd, CRC | MEd | 2:40 PM | ET | Watch Video |
| Transitioning from pediatric to adult care: a conversation | TRACK 3 | Cristina Sadowsky, MD
Cody Unser, MPH | International Center for Spinal Cord Injury at the Kennedy Krieger Institute
Cody Unser Foundation | 2:40 PM | ET | Watch Video |
| Adaptations: Mobility devices, driving, and home modifications | Sandy Hanebrink, OTR/L, CLP, FAOTA | Touch the Future | 3:10 PM | ET | Watch Video |
| Building your health care team | Benjamin Greenberg, MD, MHS
GG deFiebre, MPH | UT Southwestern Medical Center
SRNA | 3:40 PM | ET | Watch Video |
| Talk | Speaker | Institution | |||
| Welcome to Day 2 | Roberta Pesce | SRNA | 10:40 AM | ET | Watch Video |
| What is neuropathic pain, numbness, and tingling? | Ram Narayan, MD | Barrow Neurological Institute | 10:50 AM | ET | Watch Video |
| The CNS connection and psychosocial aspects of being diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM | Lana Harder, PhD, ABPP | Children’s Health & UT Southwestern | 11:10 AM | ET | Watch Video |
| Meet our non-profit partners- moderated panel | Chelsey Judge, PhD
Cody Unser, MPH Jacinta Behne Julia Lefelar Katie Bustamante Sumaira Ahmed | 11:40 AM | ET | Watch Video | |
| UTIs, catheters, and incontinence | Philippines Cabahug, MD | International Center for Spinal Cord Injury at the Kennedy Krieger Institute | 12:30 PM | ET | Watch Video |
| Identifying and managing fatigue | Sara Qureshi, MD | Billings Clinic | 1:00 PM | ET | Watch Video |
| Solutions to managing spasticity in kids and adults | Jacqueline Nicholas, MD | Ohio Health | 1:20 PM | ET | Watch Video |
| How to manage constipation and prevent accidents: Bowel management strategies | Margaret Jones, MD, MPH | Vanderbilt University Medical Center | 1:40 PM | ET | Watch Video |
| Pregnancy and a rare neuroimmune diagnosis | Tanuja Chitnis, MD | Brigham and Women’s Hospital | 2:00 PM | ET | Watch Video |
| Management of vision after optic neuritis | John J. Chen, MD, PhD | Mayo Clinic | 2:20 PM | ET | Watch Video |
| Helping you understand treatment with ENSPRYNG | Jason Kohari | Genentech | 2:40 PM | ET | Watch Video |
| Aging with a rare neuroimmune disorder | Daniel Becker, MD | International Neurorehabilitation Institute | 3:20 PM | ET | Watch Video |
| Vaccinations after a diagnosis of a rare neuroimmune disorder | Benjamin Greenberg, MD, MHS
Carlos Pardo-Villamizar, MD Michael Levy, MD, PhD | University of Texas Southwestern
Massachusetts General Hospital and Harvard Medical School Johns Hopkins Medicine | 3:40 PM | ET | Watch Video |
| Talk | Speaker | Institution | |||
| Welcome to Day 3 | Roberta Pesce | SRNA | 11:00 AM | ET | Watch Video |
| CDC AFM Biorepository and Moderated Roundtable on AFM Research With Q and A session | Carlos Pardo-Villamizar, MD
Eileen Yee, MD Amy Rosenfeld Nischay Mishra | Johns Hopkins Medicine
Centers for Disease Control and Prevention Columbia University | 11:10 AM | ET | Watch Video |
| Research 101 – learn about the process of basic science and clinical research | Benjamin Greenberg, MD, MHS | UT Southwestern Medical Center | 12:00 PM | ET | Watch Video |
| Anti-MOG Associated Disorder: Insights Into Neuroplasticity and Opportunities for Repair | Benjamin Greenberg, MD, MHS | UT Southwestern Medical Center | 12:15 PM | ET | Watch Video |
| Assessing the impact of social disparities of health on disability and access to care in NMOSD patients | Sammita Satyanarayan, MD | Icahn School of Medicine at Mount Sinai | 12:30 PM | ET | Watch Video |
| Nutrition, Genetics, and stem cells in rare neuroimmune disorders | Michael Levy, MD, PhD | Massachusetts General Hospital and Harvard Medical School | 1:00 PM | ET | Watch Video |
| SRNA research updates: Registry, vaccination study, and COVID-19 study | GG deFiebre, MPH | SRNA | 1:25 PM | ET | Watch Video |
| Research on rare neuroimmune disorders and rheumatologic diseases | Rohini D. Samudralwar, MD | University of Texas Health Science Center at Houston | 1:40 PM | ET | Watch Video |
| CIRCLES and SPHERES NMOSD Studies | Jacinta Behne | Guthy Jackson Foundation | 2:00 PM | ET | Watch Video |
| APERTURE: What have we learned about ADEM? | Cynthia Wang, MD | UT Southwestern Medical Center | 2:40 PM | ET | Watch Video |
| CORE TM and AFM | Kyle Blackburn, MD | UT Southwestern Medical Center | 3:20 PM | ET | Watch Video |
| COVID-19 and rare neuroimmune disorders | Benjamin Greenberg, MD, MHS
Carlos Pardo-Villamizar, MD Michael Levy, MD, PhD | UT Southwestern Medical Center
Johns Hopkins Medicine Massachusetts General Hospital and Harvard Medical School | 3:40 PM | ET | Watch Video |
| Closing Remarks | Roberta Pesce | SRNA | 4:30 PM | ET | Watch Video |
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