2022RNDS
October 7-9, 2022
Resource Center
Day 1 | Diagnosis
October 7 | 1:00 PM PT
Welcome
Sandy Siegel, PhD and Benjamin Greenberg, MD, MHS
Watch Video and Download Transcript
October 7 | 1:15 PM PT
Panel presentations on diagnosis and treatment of ADEM, AFM, MOGAD, NMOSD, and TM
Benjamin Greenberg, MD, MHS, Grace Gombolay, MD, Michael Levy, MD, PhD, Carlos Pardo, MD, Eoin P. Flanagan, MB, BCh, and Community Presenters
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Day 2 | Symptom Management and Tracks
October 8 | 9:00 AM PT
Management of neuropathic pain
Ram Narayan, MD
Watch Video and Download Transcript
Download Slides
October 8 | 9:30 AM PT
What are the long-term treatments for NMOSD and MOGAD?
Anastasia Vishnevetsky, MD
Watch Video and Download Transcript
Download Slides
October 8 | 10:00 AM PT
Learn about new clinical trials in MOGAD
Michael Levy, MD, PhD
Watch Video and Download Transcript
Download Slides
October 8 | 11:00 AM PT
Management of spasticity
Daniel Becker, MD
Watch Video and Download Transcript
Download Slides
October 8 | 11:30 AM PT
Research updates on management of neuropathic pain and spasticity
Michael Levy, MD, PhD
Watch Video and Download Transcript
Download Slides
October 8 | 12:00 PM PT
Respiratory Complications of Acute Flaccid Myelitis
Keith Van Haren, MD
Watch Video and Download Transcript
Download Slides
October 8 | 1:30 PM PT
Transitioning from hospital to home | TRACK 1
Janet Dean, MS, RN, CRRN, CRNP and Paul Garrett
Watch Video and Download Transcript
Download Slides
October 8 | 1:30 PM PT
Building a health care team | TRACK 2
Grace Gombolay, MD
Watch Video and Download Transcript
October 8 | 1:30 PM PT
Pediatric Mental Health | TRACK 3
Camille Wilson, MD
Watch Video and Download Transcript
Download Slides
October 8 | 1:50 PM PT
Early rehabilitation strategies | TRACK 1
Rajashree Srinivasan, MD
Watch Video and Download Transcript
Download Slides
October 8 | 1:50 PM PT
Therapy for retaining function | TRACK 2
Dennis Tom-Wigfield, PT, DPT
Watch Video and Download Transcript
Download Slides
October 8 | 1:50 PM PT
Transitioning from childhood to adolescence to adulthood | TRACK 3
Melissa Hutchinson, MD, MA
Watch Video and Download Transcript
Download Slides
October 8 | 2:40 PM PT
How do I know if I am having a relapse?
Benjamin Greenberg, MD, MHS
Watch Video and Download Transcript
Download Slides
October 8 | 3:30 PM PT
An open moderated panel session to discuss trending topics in rare neuroimmune disorders
Michael Levy, MD, PhD, Carlos A. Pardo, MD, Grace Gombolay, MD, Melissa Hutchinson, MD, MA, Eoin P. Flanagan, MB, BCh, and Kyle Blackburn, MD
Watch Video and Download Transcript
Day 3 | Research
October 9 | 9:00 AM ET
Impact of rare neuroimmune disorders on cognition, depression, and quality of life
Lana Harder, PhD, ABPP
Watch Video and Download Transcript
October 9 | 9:30 AM ET
How to cope with grief, anxiety, and loss? How to talk to others about my diagnosis?
Christa Hutaff-Lee, PhD
Watch Video and Download Transcript
Download Slides
October 9 | 10:00 AM ET
Research Updates: Tele-neuropsychology and Neuropsychological Outcomes Associated with MOGAD
Lana Harder, PhD, ABPP
Watch Video and Download Transcript
October 9 | 11:00 AM ET
Bladder, bowel, and sexual dysfunction
Philippines Cabahug, MD
Watch Video and Download Transcript
Download Slides
October 9 | 11:45 AM ET
Adaptive tools and technology for improved quality of life
Sandy Hanebrink, OTR/L, CLP, FAOTA
Watch Video and Download Transcript
Download Slides
October 9 | 1:30 PM ET
Disability: Adapting to and embracing disability
GG deFiebre, PhD, Janelle Hewelt, Cyrena Gawuga, and Paul Garrett
Watch Video and Download Transcript
October 9 | 2:20 PM ET
Know RND and the CORE TM Registry
Kyle Blackburn, MD
Watch Video and Download Transcript
Download Slides
October 9 | 2:40 PM ET
Association of rare variants in genes of immune regulation with pediatric autoimmune CNS disease
Saba Jafarpour, MD
Watch Video and Download Transcript
Download Slides
October 9 | 3:20 PM ET
APERTURE: New Insights on ADEM
Cynthia Wang, MD
Watch Video and Download Transcript
Download Slides
October 9 | 3:40 PM ET
Q&A and Closing Remarks
Carlos A. Pardo, MD, Melissa Hutchinson, MD, Kyle Blackburn, MD, Janet Dean, MS, RN, CRRN, CRNP, Courtney R. Porter, and Cynthia Wang, MD
Watch Video and Download Transcript
Resource Center
| Talk | Speaker | Institution | |||
| Welcome | Sandy Siegel, PhD Benjamin Greenberg, MD, MHS | SRNA University of Texas Southwestern | 1:00 PM | PT | Watch Video and Download Transcript |
| Panel presentations on diagnosis and treatment of ADEM, AFM, MOGAD, NMOSD, and TM | Benjamin Greenberg, MD, MHS Grace Gombolay, MD Michael Levy, MD, PhD Carlos A. Pardo, MD Eoin P. Flanagan, MD Community Presenters | University of Texas Southwestern Emory University SOM/Children’s Healthcare of Atlanta Massachusetts General Hospital Johns Hopkins University Mayo Clinic | 1:15 | PT | Watch Video and Download Transcript |
| Talk | Speaker | Institution | |||
| Management of neuropathic pain | Ram Narayan, MD | Barrow Neurological Institute | 9:00 AM | PT | Watch Video and Download Transcript Download Slides |
| What are the long-term treatments for NMOSD and MOGAD? | Anastasia Vishnevetsky, MD | Massachusetts General Hospital | 9:30 AM | PT | Watch Video and Download Transcript Download Slides |
| Learn about new clinical trials in MOGAD and NMOSD | Michael Levy, MD, PhD | Massachusetts General Hospital | 10:00 AM | PT | Watch Video and Download Transcript Download Slides |
| Management of spasticity | Daniel Becker, MD | International Neurorehabilitation Institute | 11:00 AM | PT | Watch Video and Download Transcript Download Slides |
| Research updates on management of neuropathic pain and spasticity | Michael Levy, MD, PhD | Massachusetts General Hospital | 11:30 AM | PT | Watch Video and Download Transcript Download Slides |
| Respiratory complications of Acute Flaccid Myelitis | Keith Van Haren, MD | Stanford University | 12:00 PM | PT | Watch Video and Download Transcript Download Slides |
| Transitioning from hospital to home | TRACK 1 | Janet Dean, MS, RN, CRRN, CRNP Paul Garrett | Kennedy Krieger Institute | 1:30 PM | PT | Watch Video and Download Transcript Download Slides |
| Building a health care team | TRACK 2 | Grace Gombolay, MD | Emory University SOM/Children’s Healthcare of Atlanta | 1:30 PM | PT | Watch Video and Download Transcript |
| Pediatric Mental Health | TRACK 3 | Camille Wilson, MD | Nationwide Children's Hospital | 1:30 PM | PT | Watch Video and Download Transcript Download Slides |
| Early rehabilitation strategies | TRACK 1 | Rajashree Srinivasan, MD | UT Southwestern Medical Center | 1:50 PM | PT | Watch Video and Download Transcript Download Slides |
| Therapy for retaining function | TRACK 2 | Dennis Tom-Wigfield, PT, DPT | Kennedy Krieger Institute | 1:50 PM | PT | Watch Video and Download Transcript Download Slides |
| Transitioning from childhood to adolescence to adulthood | TRACK 3 | Melissa Hutchinson, MD, MA | Nationwide Children's Hospital | 1:50 PM | PT | Watch Video and Download Transcript Download Slides |
| How do I know if I am having a relapse? | Benjamin Greenberg, MD, MHS | UT Southwestern Medical Center | 2:40 PM | PT | Watch Video and Download Transcript Download Slides |
| An open moderated panel session to discuss trending topics in rare neuroimmune disorders | Benjamin Greenberg, MD, MHS Carlos A. Pardo, MD Michael Levy, MD, PhD Eoin P. Flanagan, MD Grace Gombolay, MD | University of Texas Southwestern Johns Hopkins University Massachusetts General Hospital Mayo Clinic Emory University SOM/Children’s Healthcare of Atlanta | 3:30 pm | PT | Watch Video and Download Transcript |
| Talk | Speaker | Institution | |||
| Impact of rare neuroimmune disorders on cognition, depression, and quality of life | Lana Harder, PhD, ABPP | UT Southwestern Medical Center & Children’s Medical Center Dallas | 9:00 AM | PT | Watch Video and Download Transcript |
| How to cope with grief, anxiety, and loss? How to talk to others about my diagnosis? | Christa Hutaff-Lee, PhD | Children’s Colorado | 9:30 AM | PT | Watch Video and Download Transcript Download Slides |
| Research Updates: Tele-neuropsychology and Neuropsychological Outcomes Associated with MOGAD | Lana Harder, PhD, ABPP | UT Southwestern Medical Center & Children’s Medical Center Dallas | 10:00 AM | PT | Watch Video and Download Transcript |
| Bladder, bowel, and sexual dysfunction | Philippines Cabahug, MD | Kennedy Krieger Institute | 11:00 AM | PT | Watch Video and Download Transcript Download Slides |
| Adaptive tools and technology for improved quality of life | Sandy Hanebrink, OTR/L, CLP, FAOTA | Touch the Future/ReBoot, Inc. | 11:45 AM | PT | Watch Video and Download Transcript Download Slides |
| Disability: Adapting to and embracing disability | GG deFiebre, PhD Janelle Hewelt Cyrena Gawuga Paul Garrett | SRNA | 1:30 PM | PT | Watch Video and Download Transcript |
| Know RND and the CORE TM Registry | Kyle Blackburn, MD | UT Southwestern Medical Center | 2:20 PM | PT | Watch Video and Download Transcript Download Slides |
| Association of rare variants in genes of immune regulation with pediatric autoimmune CNS disease | Saba Jafarpour, MD | Children’s Hospital Los Angeles | 2:40 PM | PT | Watch Video and Download Transcript Download Slides |
| APERTURE: New Insights on ADEM | Cynthia Wang, MD | UT Southwestern Medical Center | 3:20 PM | PT | Watch Video and Download Transcript Download Slides |
| Q&A and Closing Remarks | Carlos A. Pardo, MD Melissa Hutchinson, MD Kyle Blackburn, MD Janet Dean, MS, RN, CRRN, CRNP Courtney R. Porter Cynthia Wang, MD | Johns Hopkins University Nationwide Children's Hospital Southwestern Medical Center Kennedy Krieger Institute Kennedy Krieger Institute UT Southwestern Medical Center | 3:40 PM | PT | Watch Video and Download Transcript |
Resource Center
| Talk | Speaker | Institution | |||
| Welcome | Sandy Siegel, PhD
Benjamin Greenberg, MD, MHS | SRNA
University of Texas Southwestern | 1:00 PM | PT | Watch Video and Download Transcript |
| Panel presentations on diagnosis and treatment of ADEM, AFM, MOGAD, NMOSD, and TM | Benjamin Greenberg, MD, MHS
Grace Gombolay, MD Michael Levy, MD, PhD Carlos A. Pardo, MD Eoin P. Flanagan, MB, BCh Community Presenters | University of Texas Southwestern Emory University SOM/Children’s Healthcare of Atlanta Massachusetts General Hospital Johns Hopkins University Mayo Clinic | 1:15 | PT | Watch Video and Download Transcript |
| Talk | Speaker | Institution | |||
| Management of neuropathic pain | Ram Narayan, MD | Barrow Neurological Institute | 9:00 AM | PT | Watch Video and Download Transcript |
| What are the long-term treatments for NMOSD and MOGAD? | Anastasia Vishnevetsky, MD | Massachusetts General Hospital | 9:30 AM | PT | Watch Video and Download Transcript |
| Learn about new clinical trials in MOGAD and NMOSD | Michael Levy, MD, PhD | Massachusetts General Hospital | 10:00 AM | PT | Watch Video and Download Transcript |
| Management of spasticity | Daniel Becker, MD | International Neurorehabilitation Institute | 11:00 AM | PT | Watch Video and Download Transcript |
| Research updates on management of neuropathic pain and spasticity | Michael Levy, MD, PhD | Massachusetts General Hospital | 11:30 AM | PT | Watch Video and Download Transcript |
| Respiratory complications of Acute Flaccid Myelitis | Keith Van Haren, MD | Stanford University | 12:00 PM | PT | Watch Video and Download Transcript |
| Transitioning from hospital to home | TRACK 1 | Janet Dean, MS, RN, CRRN, CRNP
Paul Garrett | Kennedy Krieger Institute | 1:30 PM | PT | Watch Video and Download Transcript |
| Building a health care team | TRACK 2 | Grace Gombolay, MD | Emory University SOM/Children’s Healthcare of Atlanta | 1:30 PM | PT | Watch Video and Download Transcript |
| Pediatric Mental Health | TRACK 3 | Camille Wilson, MD | Nationwide Children’s Hospital | 1:30 PM | PT | Watch Video and Download Transcript |
| Early rehabilitation strategies | TRACK 1 | Rajashree Srinivasan, MD | UT Southwestern Medical Center | 1:50 PM | PT | Watch Video and Download Transcript |
| Therapy for retaining function | TRACK 2 | Dennis Tom-Wigfield, PT, DPT | Kennedy Krieger Institute | 1:50 PM | PT | Watch Video and Download Transcript |
| Transitioning from childhood to adolescence to adulthood | TRACK 3 | Melissa Hutchinson, MD, MA | Nationwide Children’s Hospital | 1:50 PM | PT | Watch Video and Download Transcript |
| How do I know if I am having a relapse? | Benjamin Greenberg, MD, MHS | UT Southwestern Medical Center | 2:40 PM | PT | Watch Video and Download Transcript |
| An open moderated panel session to discuss trending topics in rare neuroimmune disorders | Benjamin Greenberg, MD, MHS
Carlos A. Pardo, MD Michael Levy, MD, PhD Eoin P. Flanagan, MB, BCh Grace Gombolay, MD | University of Texas Southwestern
Johns Hopkins University Massachusetts General Hospital Mayo Clinic Emory University SOM/Children’s Healthcare of Atlanta | 3:30 pm | PT | Watch Video and Download Transcript |
| Talk | Speaker | Institution | |||
| Impact of rare neuroimmune disorders on cognition, depression, and quality of life | Lana Harder, PhD, ABPP | UT Southwestern Medical Center & Children’s Medical Center Dallas | 9:00 AM | PT | Watch Video and Download Transcript |
| How to cope with grief, anxiety, and loss? How to talk to others about my diagnosis? | Christa Hutaff-Lee, PhD | Children’s Colorado | 9:30 AM | PT | Watch Video and Download Transcript |
| Research Updates: Tele-neuropsychology and Neuropsychological Outcomes Associated with MOGAD | Lana Harder, PhD, ABPP | UT Southwestern Medical Center & Children’s Medical Center Dallas | 10:00 AM | PT | Watch Video and Download Transcript |
| Bladder, bowel, and sexual dysfunction | Philippines Cabahug, MD | Kennedy Krieger Institute | 11:00 AM | PT | Watch Video and Download Transcript |
| Adaptive tools and technology for improved quality of life | Sandy Hanebrink, OTR/L, CLP, FAOTA | Touch the Future/ReBoot, Inc. | 11:45 AM | PT | Watch Video and Download Transcript |
| Disability: Adapting to and embracing disability | GG deFiebre, PhD
Janelle Hewelt Cyrena Gawuga Paul Garrett | SRNA | 1:30 PM | PT | Watch Video and Download Transcript |
| Know RND and the CORE TM Registry | Kyle Blackburn, MD | UT Southwestern Medical Center | 2:20 PM | PT | Watch Video and Download Transcript |
| Association of rare variants in genes of immune regulation with pediatric autoimmune CNS disease | Saba Jafarpour, MD | Children’s Hospital Los Angeles | 2:40 PM | PT | Watch Video and Download Transcript |
| APERTURE: New Insights on ADEM | Cynthia Wang, MD | UT Southwestern Medical Center | 3:20 PM | PT | Watch Video and Download Transcript |
| Q&A and Closing Remarks | Carlos A. Pardo, MD
Melissa Hutchinson, MD Kyle Blackburn, MD Janet Dean, MS, RN, CRRN, CRNP Courtney R. Porter Cynthia Wang, MD | Johns Hopkins University
Nationwide Children’s Hospital Southwestern Medical Center Kennedy Krieger Institute Kennedy Krieger Institute UT Southwestern Medical Center | 3:40 PM | PT | Watch Video and Download Transcript |
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