Please become a member of SRNA. It is completely free and allows you to benefit from all of SRNA’s programs and resources for medical professionals.
Become a member
Already a member of SRNA? Update your information.
Get Involved with SRNA
Join SRNA in advancing research and support for rare neuroimmune disorders. Explore our range of opportunities tailored to healthcare professionals. Engage with SRNA’s resources and community and become an integral part of our mission.
Become a Center of Excellence
SRNA recognizes medical institutions that provide exceptional, comprehensive care to patients with rare neuroimmune disorders through our Center of Excellence in Rare Neuroimmune Disorders (CERND) designation. Learn more and apply.
Join the Medical Professional Network
Help patients and their families find you! Join the Medical Professional Network to be listed on our website as a provider who cares for people with rare neuroimmune disorders.
Request Patient Resources for your Clinic
SRNA has information sheets, available in English and Spanish, for each of the rare neuroimmune disorders. We also have informational packets about our programs for patients. Fill out this form to request printed copies for your clinic.
View our Healthcare Professional Digest
The Healthcare Professional Digest contains the latest news and information for providers in the field of neuroimmunology. View the latest issue here.
Learn About the James T. Lubin Fellowship
The James T. Lubin Clinician Scientist Fellowship Award supports the post-residency training of neurologists committed to careers in academic medicine specializing in rare neuroimmune disorders clinical care and research. Learn more about the fellowship and apply to become a JTL fellowship site.
Access Rare Neuroimmune Disorder Data
We have created a patient registry to help advance research about rare neuroimmune disorders, collaborate with researchers from around the world, and identify participants for clinical trials. Researchers can request deidentified data from the Registry and recruit participants for studies. Learn more about the SRNA Registry and contact GG deFiebre at [email protected] if you would like to request de-identified data collected by the Registry.
Join as a Guest Speaker on a Podcast
We host several podcast series focused on educating patients about rare neuroimmune disorders. Join as a guest speaker on a podcast to share your knowledge and answer questions from the community. Fill out this form to get started.
Present at the Rare Neuroimmune Disorders Symposium
Each year, we host a Rare Neuroimmune Disorders Symposium to share the latest information with patients, families, researchers, and healthcare professionals. Email Krissy Dilger at [email protected] to become a guest speaker and present on a topic at the next symposium.
Speak at a Support Group Meeting
SRNA hosts Support Group Meetings for people diagnosed with a rare neuroimmune disorder. Speak at an online meeting and answer questions from attendees. Sign up to volunteer at a Support Group Meeting.
Attend the Quality of Life Family Camp
Every summer, we host a camp for children diagnosed with a rare neuroimmune disorder and their families at Morgan’s Wonderland Camp. Join as a volunteer to help put on educational sessions for parents and get to know the families of children diagnosed with these disorders outside the clinic setting. Email [email protected] for more details on how to join as a volunteer. To learn more about camp, click here.
Programs for Patients
Share these programs with your patients to provide them with valuable support, education, and resources for managing their condition.
Support Groups
SRNA has built a virtual community to encourage connections all over the world through our Support Group Network. Participants can meet with others who have been diagnosed with a rare neuroimmune disorder and discuss how they are feeling, how they manage their symptoms, ask questions, and offer solutions to problems they have experienced.
Quality of Life Family Camp
Every summer, we host a Quality of Life Family Camp for children diagnosed with a rare neuroimmune disorder and their families at Morgan’s Wonderland Camp. Families can experience the joys of summer camp in a completely accessible venue.
Peer Connect Program
Our Peer Connect Program pairs participants with a Peer Connect Leader, or PCL, who has the same or similar diagnosis and background. This volunteer-led initiative connects individuals diagnosed with a rare neuroimmune disorder or their care partner and loved ones to provide a safe space to discuss their diagnosis.
Online Learning Course
SRNA developed an online micro-course for patients, Understanding Rare Neuroimmune Disorders. This educational tool is designed to enhance patients’ understanding of their condition, empowering them to make informed decisions about their health and treatment. The course features Dr. Benjamin Greenberg and is free for all participants.
Myelitis Helpline
The Myelitis Helpline is a free online resource that allows those who have recently been diagnosed, or anyone at any point after the onset of a rare neuroimmune disorder, to get answers and support about living with their disorder.
