Earlier this year, SRNA launched our This is Me campaign to bring awareness and understanding to rare neuroimmune disorders. We invited members of our community to share their story with the goal to challenge the social issues and understanding around rare diseases and disabilities. The campaign also aims to break the silence by supporting people diagnosed with rare neuroimmune disorders to tell their own stories.
Luke is a young member of our community who decided to share his story. He was diagnosed with MOG antibody disease (MOGAD) in 2019 and wants people to know what it’s like to live with this disorder. View his story below.
“Participating in this campaign is important to our family, because more awareness means more research and potentially a cure!”
If you would like to share your story as part of our This is Me campaign, you can learn how here.