SRNA at Disabilities Expo
Carol Carney
We were given the opportunity to spread awareness about The Siegel Rare Neuroimmune Association and rare neuroimmune disorders at the Mobility Works 5th Annual Disabilities Expo in Tinley Park, IL on November 7th, 2015. Mobility Works, which sells adapted vehicles, has been a sponsor for the last two SRNA Illinois Walk-Run-N-Roll awareness and fundraising events and generously offered a free booth to our fundraising committee at this year’s expo.
Three committee members took this opportunity to set up the booth with SRNA banner, posters of patients relating their personal stories of their disorders, and loads of materials about the association.
It was a welcome surprise for four attendees in particular, who visited our booth, because they had never talked to or met others who had TM nor had they heard of the association. The sharing of information was a positive experience for everyone. Each of the four eagerly gave their names and their preferred method of communication so they could be included in receiving important and up-to-date information from SRNA. At the end of the day, the committee members decided that it was a day well spent and they would definitely take the opportunity to do it again. We were reminded of how many people are still out there who have these rare neuroimmune disorders SRNA advocates for and who need to know about the association and the benefits of belonging to SRNA.
