A conversation on disability and rare neuroimmune disorders
SRNA’s Dr. GG deFiebre and community members Cyrena, Maria, Aidan, and Leah discussed adapting to disability, disability identity, and more.
Rehabilitation and recovery
At the 2023 Virtual RNDS, Dr. Rajashree Srinivasan discussed the importance that rehabilitation plays following an inflammatory attack.
Cognition, depression, and rare neuroimmune disorders
Dr. Lana Harder discussed how rare neuroimmune disorders can affect psychology and behavior, and offered coping strategies.
Care for the caregivers
Paula Hardeman offered suggestions on practicing self-care and other strategies for caregivers to maintain their own health.
2023 Virtual RNDS | Open Q&A Session
Drs. Benjamin Greenberg, Michael Levy, Carlos Pardo, Jennifer Graves, Kyle Blackburn, and Paula Hardeman answered the community’s questions.
Transplantation of human glial restricted progenitor cells into TM patients
Dr. Benjamin Greenberg discussed the study of the transplantation of human glial restricted progenitor cells into patients with TM.
AQP4 and MOG tolerization research
Dr. Peter Sguigna of the University of Texas Southwestern discussed tolerization and current research in AQP4-positive NMOSD and MOGAD.
Clinical trials in MOGAD, NMOSD, and more
Dr. Cynthia Wang of the University of Texas Southwestern discussed current clinical trials to test possible treatments for MOGAD and NMOSD.
Neuropathic pain research
At the 2023 Regional RNDS, Dr. Diana Tavares Ferreira discussed research that addresses neuropathic pain in rare neuroimmune disorders.
Urological management in rare neuroimmune disorders
Dr. Micah Jacobs of University of Texas Southwestern Medical Center shared management strategies for bladder dysfunction.
