Thank you for joining the Siegel Rare Neuroimmune Association!
We are a patient advocacy group focused on supporting our over 14,000 members globally, individuals diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, and TM, their families, caregivers and medical professionals specializing in these rare neuroimmune diseases.
Stay informed about new treatments for those newly diagnosed with these rare neuroimmune disorders, including what to expect as someone newly diagnosed, acute treatments, the importance of rehab, and how to get connected to others with a rare neuroimmune diagnosis.
Find helpful resources about these disorders, including our medical professional network, our resource library that includes newsletter articles, symposium videos, and summaries of new research, smart patients online health community forum, and our support group network.
Learn more about our programs, including the Quality of Life Family Camp, the James T. Lubin Fellowship, the Rare Neuroimmune Disorders Symposium, and the “Ask the Expert” Podcast Series.
You can learn more about our supported centers of excellence, the academic grants and research publications we fund, clinical studies and trials, and join our registry.
Members who are medical professionals can learn more about the CRND Certification for continuing medical education.
SRNA holds events like Walk-Run-N-Rolls, Golf Outings, and Rare Neuroimmune Disorders Symposia.
As a member you can use your voice to advocate for individuals with rare neuroimmune diseases, mobilize an awareness day, or start a support group in your area.
Our website contains resources on how you can start fundraising, or start a Walk-Run-N-Roll in your city.
