Announcing the First Virtual Rare Neuroimmune Disorders Symposium!

2020 has been a year of many changes. SRNA has adapted several of our programs to be conducted virtually, which has helped keep our community connected while staying safe during the COVID-19 pandemic. Although we had to make the difficult decision to cancel the in-person Rare Neuroimmune Disorders Symposium (RNDS) that was to take place in Utah this month, we are excited to announce that the RNDS will be held virtually on Saturday, August 29^th! We are thrilled to still be able to offer this experience to our community as it is one of our most important and long-standing programs.

The Virtual RNDS is a one-day educational conference, hosted by the Siegel Rare Neuroimmune Association and the University of Utah Health, for those affected by rare neuroimmune disorders — Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (TM). The conference will include speakers on a variety of topics, including presentations on each of the rare neuroimmune disorders, talks on symptom management, two Q&A panels with our experts, several breakout sessions, and more. You can find a full schedule on the event page here.

Another change this year is that the event will be free to attend! You can find details about the conference on the event page here. Please note that although the event is free, you must register in advance in order to attend. Registration for the breakout sessions is required as well, which can be done here.

Although we are disappointed that we will not get to meet in-person with our community as planned, we are excited for the advantages of using a virtual platform. We are utilizing the platform Hopin to conduct this virtual event, which provides an accessible experience for our participants. For example, members from our community across the world will now have access to attend without the hassle or cost of travel. The platform also has a tool for individuals to connect both privately and through a public chat function, which will allow for active feedback and discussion throughout the conference. We are very excited to bring our community together for this educational experience, and we hope you will join us for this event!

Questions? Please feel free to contact us at [email protected].