My name is Megan Crawford, and this is the story of John, our son, who was diagnosed with Transverse Myelitis. John was a very active baby. He was growing and starting to form words and almost walking. He was able to stand around a low table and walk all the way around it just by holding on.
On March 12, 2013, when John was just 9 months old, we noticed he was being extra fussy. That evening, we noticed he was suddenly unable to support himself and could not hold his body up. Knowing something was wrong, we took him to our local, small Emergency Room. They ran blood tests, did a CT scan, ran X-rays and even did a spinal tap, yet they could not come to any conclusion. By midnight, his respiratory system was starting to show signs of distress, so he was transported by ambulance downtown to Florida Hospital Orlando. Immediately, he was admitted into the Pediatric Intensive Care Unit (PICU), and doctors began scrambling to try to determine what was going on. His doctor ordered a brain MRI and a spinal MRI. The next morning, we received the news: “Your son has a rare condition called Transverse Myelitis.”