Overwhelmed, in a panic, or don’t know where to start?
We know firsthand how difficult being diagnosed with a rare, immune-mediated demyelinating disorder of the central nervous system (brain, spinal cord, and optic nerve) can be. We know how frightening and isolating it be can when given a diagnosis of a rare neuroimmune disorder — acute disseminated encephalomyelitis, acute flaccid myelitis, MOG antibody disease, neuromyelitis optica spectrum disorder, optic neuritis, or transverse myelitis.
If you haven’t done so already, please take a few minutes to become a member of the Siegel Rare Neuroimmune Association. There is no cost to do so and we will keep you informed of the latest information on treatments, research and management of rare neuroimmune disorders as well as our programs.
Being newly diagnosed with a rare neuroimmune disorder is hard, but please know that we are here for you. You are not alone. We are here to help. We are here to guide you through it all and to support you.
Find medical care
Finding medical professional in your area who specializes in rare neuroimmune disorders is is key when you’re newly diagnosed. You can find medical professionals in your area that specialize in rare neuroimmune disorders in our Medical Professional Network. Medical professionals often specialize in treatment for individuals who have had spinal cord injuries or multiple sclerosis, which makes them an ideal resource for your recovery, even if they do not specialize in rare neuroimmune disorders.
Search by name, country, state, and specialization to find the institutions and experts in rare neuroimmune disorders near you and connect your health care team to our medical experts to ensure you are getting the best care possible. We have over 150 medical professionals in our network, and the list is growing.
Please contact us if you are not able to find a medical professional near you.