SRNA’s 2020 Virtual Quality of Life Family Camp

Every year, SRNA holds a summer camp for kids diagnosed with a rare neuroimmune disorder and their families. Although this year’s camp was a bit different, we were still committed to hosting this experience for the families in our community.

SRNA’s Virtual Quality of Life Family Camp was held online, Friday, July 24, through Sunday, July 26, 2020. This special virtual camp was for families with children diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, and TM.

Due to the COVID-19 pandemic, we and our camp partners, The Center for Courageous Kids (CCK), made the difficult decision to forgo all in-person events and bring our camp experience entirely online. While this was different and certainly was not the same as meeting in person, we hope this virtual camp experience was still a welcome opportunity for our families. We encouraged all parents and guardians who were interested to register and ask questions, engage with one another and our medical professionals, and get a glimpse of the incredible fun CCK has to offer! Various sessions were held throughout the three days and covered a wide range of topics. Families’ active participation enriched the online camp experience for everyone! We hope that we will be able to meet in-person in the summer of 2021, and we are closely monitoring the COVID-19 pandemic and will make a decision next year based on public health recommendations.