SRNA Magazine

2020 | Issue 2

Can you imagine what changes are coming our way from the experiences we are currently having with The COVID?  Some of these changes are going to be unimaginably profound.

All Articles

The 2020 Rare Neuroimmune Disorders Symposium (RNDS) took place on August 29th with our co-host, University of Utah Health.

There are now three FDA-approved medications for maintenance in NMOSD. Anything else that is prescribed is done off-label.

In August 2019, Nationwide Children’s Hospital launched a multidisciplinary pediatric Neuroimmunology Clinic.

Dr. Jonathan Galli recently completed his James T. Lubin Fellowship, treating patients with rare neuroimmune disorders.

Since the beginning of the COVID-19 pandemic, SRNA has kept an updated information page to keep our community informed.

In 2014, SRNA and seven clinics across North America began a research journey to follow pediatric transverse myelitis diagnoses.

The AFM Physician Consult and Support Portal was established in May 2019.

Since the start of 2020, SRNA has hosted seven “Ask the Expert” podcasts.

Every year, SRNA holds a summer camp for kids diagnosed with a rare neuroimmune disorder and their families.

The Acute Flaccid Myelitis Working Group, Johns Hopkins Medicine, and Kennedy Krieger Institute organized a virtual symposium.

Earlier this year we announced a partnership with The MOG Project to advance our joint goals.

On May 5th, 2020, #GivingTuesdayNow took place as an emergency response to the unprecedented need caused by COVID-19.

The best-laid plans…ah well, we know how to pivot with the best of them, right?

Our organization was volunteer-led for nearly 20 years, and volunteers are still the backbone of much of what we do.

The MOG Project responds to receiving the 2019 SRNA Distinguished Service Award.

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