SRNA Magazine
2024 | Issue 4
Edited and Compiled by Landy Thomas
I am so proud and grateful for our excellent staff and our many exceptional volunteers. As a volunteer for the past 30 years, I can attest to the fact that volunteers remain the foundation of our organization. We could not do this work without them, and we are grateful for their generous involvement.
All Articles
Welcome to SRNA’s fourth quarterly magazine of 2024, themed on 30 Years of Impact.
In this article, we preface the first series of writings that showcase the early days of our organization.
Jim Lubin, through the use of a sip-and-puff interface, was the cornerstone of SRNA's effort to reach people worldwide through the internet.
What one must remember above all is that change is part of life: it is inevitable and unavoidable. As functional, effective, and imaginative human beings, we must be able to deal with change.
From the Editor, a compilation of letters from Sanford J. Siegel turned into found poems.
Once, there was no one to turn to, no information to help us understand what was happening to our bodies or what our futures might hold.
How long has TM been around? A documentation on the history of transverse myelitis up until the year 2000.
We find solace in each other, across physical distance and across time. This article introduces a series of community stories.
I know crying will not help, so instead, I try to think of this disease in a positive way by looking at the good instead of the bad.
My doctors have called my recovery remarkable, even miraculous. In the beginning, I couldn’t feed myself or blow my nose.
Finally, there was one neurologist with an answer. He told us it was ADEM.
Nursing school is hard enough without going into it with a disability. I have spent two years proving not only to others, but to myself that I can do this.
Today, I encourage everyone, with or without a neuroimmune condition, to live for themselves, not for who others think they should be.
There is so much that we have had the privilege of getting to do for the sake of our community over the last 30 years, and there is so much more we have planned for our future.
This online educational experience is tailored to provide a comprehensive understanding of rare neuroimmune disorders.
Learn how to pitch your rare neuroimmune disorder story to your local media.
We aim to end rare neuroimmune disorders so that no one will have to experience the heartbreak of having these conditions ever again in the future.
SRNA is proud to be an organization that helps facilitate connection. We're here for you all with a great love for community in our hearts.
