SRNA Magazine
2025 | Issue 1
Edited and Compiled by Landy Thomas
In this issue of the magazine, we will address the most difficult and, perhaps, consequential aspect to our mission: finding a cure for these disorders. When Pauline and I first began this work, we knew that research needed to be done. We didn’t know what specific research needed to be accomplished and we didn’t know a single human being who might do it. That world has changed dramatically.
All Articles
In this issue of SRNA’s Magazine, we will be covering what it means to be disabled and what it means to be strong.
There are people who feel strongest when they are called a warrior, and that there are people who just want to be human
I knew I had to stay strong for my family’s sake, my husband and my 3 teenaged boys. However I am no superwoman.
Having a disability is not something to be ashamed of—at camp, there’s an atmosphere of love that holds us all together.
You’ll be surprised at the strength you have when fighting for the life of your child: the strength to overcome debilitating grief.
To be human and disabled means that life may require those with disabilities expend more effort to meet the same goals.
Living with MOGAD shapes me into a physician who can uphold that promise I made a year ago.
This disease is very tough and the after-effects mark us all, but we are very fortunate that Mailys is a very brave and cheerful girl.
Ten years later, I still live with the echoes of that diagnosis. But I also live with profound gratitude for the people who helped me.
If we are all human, we can always band together to support and empower one another.
Join the SRNA Support & Connect Discord to create connections across the community and ensure that no one feels alone.
SRNA’s 2025 Walk-Run-N-Roll dates are here! Find the dates and locations for these community meetups and fundraisers here.
