SRNA Magazine

2025 | Issue 2

Edited and Compiled by Landy Thomas

President’s Column

This positive spirit is so dramatic for me to hear. Are these people being courageous in their reaction to this adversity? I believe that they are. This notion is reinforced for me by the fact that none of them considers what they are doing as courageous. They are just living their lives, taking as much control as they possibly can, moving on and trying to make the best of difficult circumstances.

Featured Update

Don’t miss it! SRNA and Can Do MS (CDMS) have partnered to bring you a free coaching series that will help equip those living with rare neuroimmune disorders and their care partners with the vital tools needed to meet their goals and create real life changes. Read more about the program here, and don’t forget to register. The first session is on July 22nd!

All Articles

Disability and Strength
In this issue of SRNA’s Magazine, we will be covering what it means to be disabled and what it means to be strong.
To Be a Warrior
There are people who feel strongest when they are called a warrior, and that there are people who just want to be human
My Transverse Myelitis Journey
I knew I had to stay strong for my family’s sake, my husband and my 3 teenaged boys. However I am no superwoman.
My Time at Camp, a Retrospective
Having a disability is not something to be ashamed of—at camp, there’s an atmosphere of love that holds us all together.
My Superhero. My Son.
You’ll be surprised at the strength you have when fighting for the life of your child: the strength to overcome debilitating grief.
To Be Human
To be human and disabled means that life may require those with disabilities expend more effort to meet the same goals.
The Patient and the (Future) Physician
Living with MOGAD shapes me into a physician who can uphold that promise I made a year ago.
La lucha de Mailys
This disease is very tough and the after-effects mark us all, but we are very fortunate that Mailys is a very brave and cheerful girl.
The Plot Twist That Changed Everything: Reflections Ten Years After ADEM
Ten years later, I still live with the echoes of that diagnosis. But I also live with profound gratitude for the people who helped me.
Disability & Strength: Where We Go From Here
If we are all human, we can always band together to support and empower one another.
Join our Discord to Connect with the SRNA Community!
Join the SRNA Support & Connect Discord to create connections across the community and ensure that no one feels alone.
2025 Walk-Run-N-Roll Dates Announced!
SRNA’s 2025 Walk-Run-N-Roll dates are here! Find the dates and locations for these community meetups and fundraisers here.

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