2020 was difficult. But despite the challenges the world faced in 2020, we at SRNA are proud of the accomplishments our community achieved this year. In these uncharted times, we broke new barriers to further our mission. Let’s take a look back at our top 20 accomplishments of 2020 as we prepare to enter the next chapter.
In 2020, we:
- Welcomed 571 new members into the SRNA community
- Held our first Rare Disease Month campaign
- Attended our first Reeve Summit to learn and connect with others in the spinal cord injury community, and to spread our mission
- Published two issues of the SRNA Magazine
- Held our first virtual Quality of Life Family Camp
- Funded five research publications
- Launched a brand-new podcast series, ABCs of NMOSD, in collaboration with the Connor B. Judge Foundation, The Guthy Jackson Charitable Foundation, and The Sumaira Foundation for NMO, which was made possible through a patient education grant from Viela Bio
- Created a COVID-19 information page to keep our community informed
- Co-hosted the first virtual Rare Neuroimmune Disorders Symposium, along with our partners at University of Utah Health
- Added 13 medical professionals to our Medical Professional Network
- Hosted 9 episodes of our Ask the Expert Podcast Series
- Launched our new Peer Connect program
- Held our first virtual Walk Run ‘n Roll, with the support of our Wisconsin support group leader, Maleah Moskoff
- Awarded the 2019 Distinguished Service Award to several of our volunteers, who help make our work possible and further SRNA’s mission
- Held our first AFM Awareness Month in July
- Introduced 10 new Hope Ambassadors
- Held our first virtual support group meetings
- Sponsored the AFM Virtual Symposium, which was organized by the AFM Working Group, Johns Hopkins Medicine, and Kennedy Krieger Institute
- Made transcriptions available for all new symposium videos, podcasts, and other audio resources in our Resource Library
- Launched a research survey to gather information on how the COVID-19 pandemic is affecting our community
Thank you for being a part of yet another hopeful year!
We’re also reaching the end of our 2020 year-end fundraising campaign, and we’re running short of our target. If you’re able, please help us meet our goal today — at whatever level feels right to you. You can make a tax-deductible gift on our website or send a check to SRNA at PO Box 826962, Philadelphia PA 19182-6962.
Every single gift will help us continue to serve as a trusted resource and support system for all those with rare neuroimmune disorders.
Wishing you and your loved ones a healthy, joyful, and restorative new year ahead.
With love and gratitude,
Thank you to our educational sponsors
All educational content and programs are solely developed by the SRNA staff, members of the scientific board and approved by Board of Directors.
Thank you to our partners